Synopsis | Director's Statement
Lew is a funny guy.
His taste for the absurd has served him well throughout a successful
career as a Hollywood film executive turned writer/director.
Without exaggeration, he's one of those people who is genuinely
liked and admired by all who know him.
In 2003, at
the age of 33, Scott Lew was diagnosed with
ALS, also known as Lou Gehrig's
ALS is a commonly
fatal neuro-muscular disease, which leads
to the loss of the ability to breathe, speak, chew, swallow, or
support one's own body weight. Because ALS attacks
only motor neurons, the senses of sight, touch, hearing,
taste and smell are not affected. For the vast majority of people,
the intellect remains sharp throughout the course of the disease
despite the eventual, total paralysis of
the body. The average life-span of a patient with ALS is three
to five years from the time of diagnosis.
devastating news and the rapid progression of his disability,
Scott forged ahead and made the choice to direct his first feature
film, Bickford Shmeckler's Cool Ideas. He
had written the script years before, about an eccentric college
kid whose grand theories of the universe
reach cult status. Characteristically "Scott" in the
script's cosmic reflections and wildly
funny writing, we see the ideas in the film strangely parallel
Scott's changing perspective.
Over the next
three years, as Scott worked tirelessly to achieve his goal, trusted
friend and filmmaker Adam Bardach set forth
to document Scott's trials and triumphs. The resulting film, Living
With Lew, is an intimate portrayal of a man forced to make
enormous life-decisions in the face of seemingly
is ultimately a story of hope, bravery and
a family's love. It is the story of one
man's indomitable spirit, relentless lust
for life, dogged pursuit of a dream
and his wild, subversive sense of humor
that carries him through an unimaginable turn in his life story.